100 percent free adult hookup - Cystic fibrosis patients dating other cystic fibrosis patients

Sheldon and Arlene Bearman and The Herbert Bearman Foundation have supported creation of a sophisticated, online resource that covers all aspects of cystic fibrosis (CF), from pioneering research findings about the structure and function of the CFTR protein to novel therapies to clear airways and control infections to new ways to manage CF at home.

cystic fibrosis patients dating other cystic fibrosis patients-17

Each person’s decision as to when and how to include their partner is quite individualized.

There is no specific timeline or rule on including your partner into your medical regimen; however I must emphasize the benefit (to you, as well as the relationship) of welcoming that person into your support system.

erinjenkins: What I dont understand is if neither one of us have Cepacia, we both know exactly what infections we have, we do all of our treatments and tell each other when we arent feeling well and stay away from one another when we are sick how can we make each other sicker? But because CF can affect each person so differently its impossible to know if the bugs you grow but dont give you that much trouble might cause a dramatic decline for your partner.

It is so disheartening to me that you find someone who gets you 100% and you cant be with them because you MIGHT get cross contamination. Of course the flip side of that being that it might not cause any major issues. If you feel the well documented risks are worth your life or your partners life then I dont think anyone can stop you.

A picture tells what a thousand words cannot, especially when it comes to CF tests like mutation analysis and nasal potential difference.

Cystic fibrosis can be a socially isolating disease.

A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

It is the most common fatal genetic disorder affecting Canadian children and young adults.

There is a great desire for the exchange of these experiences, the sharing of successes, as well as news about drug advances and the latest therapies. Connect with us via our social media sites to tell your story. You can subscribe to Partners in Discovery, our CF research newsletter.

The research section of our site will keep you up to date on the latest studies and bench-to-bedside therapies at Hopkins. On our People pages we’ll tell you about our CF faculty and staff, from physicians and nurses to nutritionists and therapists, who work with you each day to fight CF and improve your quality of life.

I would not recommend it because of cross infections. Another story of a CF couple was recently in the news, comparing them to the characters in the movie The Fault in Our Stars. She ended up with Cepacia and lost the rest of her lung function.

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